Wednesday, June 3, 2009

OK - we're back. For those of you who didn't know we were at the University to have a Geneticist look at our daughter. It has been about 12 years since we saw a geneticist and since science is advancing all the time, it was past time for a check up. We really don't care what label gets put on our daughter - she'll be the same to us regardless of what "condition" she gets labeled with - but we do think it is important to know what that label is. Here's why - let's say she has "abc syndrome" well, doctors know that people with "abc syndrome" tend to have eye degeneration in their thirties. Or maybe she has "def syndrome"? Well, those people tend to have heart failure by the time they are 25. See? If we know what to look for we can take preventative measures. That is why we want to know what is going on. Anyways, we didn't get any answers yesterday. They did take blood and will run some tests though. When the chromosone test was done years ago they told us there was a "blip" (picture fuzzy black and white) on a chromosone - well, now the test will come out in basically high-def color!! (By the way she sat still for the blood being drawn - was a real little lady!) We won't have answers about those tests for several weeks. I really don't expect answers until the end of the summer - so we are just going to forget about it - we have been down this road before and I've gotten myself all worked up for nothing. Not going to happen this time. Really. If and when we know anything I'll let you know - I'll call and then maybe blog. Take care and it will be back to crafting for me soon - like maybe today????

1 comment:

Anonymous said...

You sound very wise and have things well-thought-out. Good luck with everything, and the best to your daughter!

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